VIVRE AVEC LE S.E.D

Ehlers-Danlos syndrome is an orphan genetic disease, the symptoms are numerous and vary depending on the patient, complicating the diagnosis. The association created in March 2008 aims to inform the medical profession and the public about this disease. It also operates in schools, colleges, colleges, institutes… Everyone can contribute through a gesture to help those affected by the association. The association collects all kinds of plugs (plastic, liking, metal…). The money collected allows the association to finance various actions and exceptional aid. Get your balls!